No way!!! Out. Cannot live in the now.

From the lowest to the depths of hell. I waited 2 years to hear from my brother my best friend the kid I love so much, He contacted me I was so excited and relieved and then he told me how insignificant my life is, How I am just not worth it. This broke my heart and left me unable to move or talk for days, Don’t even mention food, Then I see my psychologist and she says what they all say. He is a grown man. He can deal with things. I never thought I would be living this far from him. I never thought he would disregard me so easily. WHat is the point. I tried again, a massive overdose and woke in hospital but of course the mental health ‘team’ one person says I am doing fine and just need to relax and go to church!!!. I am 6 months or more passed relaxing. I was promised DBT 2 years ago. So I turn up for my appointment and they tell me I have the wrong day even though I have they’re card saying the time they refuse to look at it and take me into another room where I had spent 2 hours filling out there commitment forms just to hear them say you need a specialist and we can’t help you we will not consider you for DBT. I think death might be my only way out  of this enormously shit situation. I don’t think I am sorry anymore. I asked for help I asked over and over until I was demoralized to the point I have nothing left. I wish just one person was close enough to talk to but this seems to possible be the very last post. I have not slept or eaten for weeks, I am in pain all the time. I cannot afford docs or meds anymore. I am on a very thin thread. Love to all. I hope you can handle it down here because I cannot. I will leave now. Thanks M.I and P.A for your ongoing help. I am sorry to let you down. Peace, I have had enough. I cannot sustain my life anymore. Your friend, Nightworrier. You are in my thoughts.

Very Sick

On Saturday I got very sick. I felt so hot, I checked my temperature, it was 39.5 I figured It was way hot. My friend told me to take some paracetemol I took 2 and half hour I was feeling good enough to put myself to sleep, When I woke up I felt ok I had something to eat. Then I decided to go back to bed when I went to lie down. As soon as I lyed down I felt sick again, Then violently threw up, about 5 times, least to say my partner wasn’t impressed,  He got a bit of splash.  😦 I ket apologising for it. He was a good man and got it all cleaned up. I got up again and just felt unbearabley hot and tried cooling down.

That night I got the temperature again. This time my temperature was 39.5 and the paracetamol didn’t do any thing at all. I kept checking and every minute the thermometer showed a higher reading, at 39.9 I said to my partner ”I have to go to hospital” He jumped straight up and got me in the car he’d been waiting for me to say it’s ok I need to go to the hospital.

When we arrived at the emergency doors I opened the car door while my boy went n parked the car. I remember the light being too bright and I remember trying to walk towards the triage desk but before I knew it I had thrown up again and passed out on a waiting lounge, I woke up again in a room in emergency I still could not see and the headache was getting worse they checked my tewmperature again and started fluids through both arms as well as some kind of pain relief for my head. I answered some questions for the doc in the dark room.  I felt so unwell and fell asleep again. I woke up again in Intensive Care, People wore full body protection and we all had masks on, It was actually somewhat a good feeling to know I didn’t need to keep trying to save myself, that others had taken over was a huge relief.

They did many tests and kept me in ICU for 2 days till I was realesed to a ward. On the last day in ICU I felt lucid for the first time in a while I looked around and wondered what happened to me I found sticthes in my hand holding a tube in. I didn’t know whatthey were doing but I trrusted them, They got my temperature down and said I was good enough to go to a ward.

Spending my hours awake in the renal ward with 3 other guys was at first a little unsettling but once I met them they all seemed nice. The nurses I had were amazing and their bedside manner was more than you’d expect. They gave me info on how to stay healthy and give myself rest, something I have not been good at in the past. I had had so many bloods taken and canulas put in I was starting not to be scared when they asked for more blood.

On the last day in their which was Wednesday They came in and said the results showed a multi resistant strain of the infection. So A big stop sign was stapled on my curtains warning people not to see me without a mask. The nurses and doc said they had no where for me to stay as I may make the other patients sick so they said home would be best and to keep taking antibiotics and get another blood test done in a week. Sounds easy enough.

It’s Sunday now, It’s been a week since that awful illness and I feel so much better, I am drinking plenty of clean water and eating healthy so I can get back to my life, The one I was getting good the one I was finding a way out of the deep depression feeling. Least my face isn’t hurting so much now. I went for a little skateboarding today only 20 mins but enough to know Im feeling better.

So that was my last week, If I am ever so sick again I won’t wait I will see my doctor before things go out of control.

Peace, Nightworrier.

“You should really think about moving on from dancing!” Part 1

These are the wise words from my psychologist don’t get me wrong he was helpful in almost every other aspect, saying this was just like telling an artist to throw out their brushes and move to playing professional snooker. It was completely unexpected, I am just reaching peak fitness again and he says that!!!. It’s lucky he ironically gave me coping strategies to deal with times people say things like that.

Though Dr H****s was a great doctor and I am still a bit shocked he took this so seriously, I know in his mind he knows it wasn’t for real and he knows it wasn’t him I was angry at. For the sake of truth I will scan the letter he sent me to show how rude it was. I mean the language was fine but the clear undertone and lack of letting the patient (me) have any say at all just seem totally unjust. This wasn’t an angry centerlink worker or a bus driver this was my psychologist the person who is supposed to understand my problems as they have been all laid on the table for him to see yet the only thing I see laid out in front of him is an Ipad, Which was swapped from a diary not long ago and may have acted as a barrier between us, As as soon as he started using it I would dread the next time he picked it up to me it felt like he was more interested in using the calender for the next appointment than really listening to my wishes, I had hoped he had seen more of my dance work before he judged my capacity to dance on a national level.

He sounds like he wants to show me he is doing the best for his kids and that he is a good Dad, That was already proven by the paintings on his walls. I really thought he had more smarts than that.

And especially to really leave me out in the cold, Well the proof is here I am coping well I might be drinking a bit more than I use to but we all need a break from such intense stress in our lives. I have a few really good friends getting me through this thanks FFC thanks Julian thanks M thanks Morbid and thanks to my partner for helping me through as much as humanly possible. Thanks to my family I know your thinking of me. xo

So a doctor review would be in order right? I mean one by me. I may not be able to talk to him but I can help anyone who gets him understand some things about him. The good the bad and yes the ugly.

He loves DBT!!! Without giving much understanding of my situation he wanted me to do it. I didn’t want to because I don’t believe it will suit my condition, I think it’s the latest fad Mental health phenomena like CBT some people will get help and the people it doesn’t suit will waste another six months struggling with thoughts and actions . Pushing people in the deep end has never worked in the past in mental illness and with my social phobias being in a group situation once a week is really really hard I have done much therapy 2 inpatients stay and social situations still scare me just as much. Talking eating, or just being in the same room. I feel like people judge me a lot and its not paranoia they really do, I am not very girl looking and about 50 percent of the time both genders of all ages think I am a boy, Now most of the time this doesn’t bother me (long story  but sometimes it really upsets me, Not only that I dress like I dance sometimes and because I break I dress with loose pants, sneakers and a shirt or in the eyes of a by passer someone who doesn’t care for being sexually attractive. I was hoping people would see me attractive because of my personality not my dress code and hair styles, But Even when people don’t want to judge it’s like a built-in instinct, Only the people who know me or have read this over time would have any idea what I am really like.

I better run I gotta train. I have a dance show!!! on today wish me luck, Peace and love,

Nightworrier xo

Doctors,doctors and more doctors.

I have had many mris and mre scans? can’t remember. Allergy tests, consultations on brain surgery which always ends up the same – “sorry the aneurysm is to close to the brain stem and we can’t fix it but we will keep zapping your brain with cts, and mris till we get the answer we want.” Which will never happen it’s just pointless half hour conversation on how TN is just going to be there indeterminately. Then I leave the hospital feeling helpless and useless to the world.

Which brings me to the psychologist who is a great doctor but at the moment I am going through some difficult things with him. I want to get over these thoughts of everything and I trust he can help, I just feel scared to say anything as I would rather try to forget the past. Seems like the right thing to do right, No it’s not We all have to face our problems no mater how hard it seems. Eventually the thoughts are supposed to become so boring I don’t stay up all night worrying.

My GP and Psychiatrist are doing everything they can think of. Bless them.

It probably wasn’t the perfect time to start telling him, as I had a performance to put on in between sessions. I can’t stop thinking about the things I have revealed to him.

I don’t know what I will say everytime I turn up to the session I feel really weird/scared, But as soon as I get in the room I’m ok, He is not intimidating at all and lets me say what I need but also asks me to talk about things which I feel are hurting me in someway, I gotta get out of this head space.

All up I do have very good doctors that do everything in their power to give me some quality of life.

Please don’t think oh but you have skills and qualities others don’t well you all have skills and qualities I don’t. So please don’t compare my “fantastic life” with reality. I have had so many “mental health experts tell me, “You have so much to live for- by the way are you on drugs because u sound blah blah, I am sure on the call list when you ring the help line the first thing they always say is what have you taken? they could just read the file and see I have TN and some/ most of the time I don’t talk perfectly clear. I hung up on the last person to say that. even after I said I am going in a competition (no drugs rule) Why the hell would I compromise that.

Well that’s all I have to say at this time of morning, Peeace, look after yourself and son’t let the big man drown ya.

Nightworrier.

Sleeping problems & depression

I started taking a new tablet to help me sleep because my sleeping pattern is all over the place and not much of it so I kinda feel like a  zombie a lot. In a really last ditch effort to sleep with the help of drugs I tried “Mirtazapine” I had heard of it before but thought it was for depression it is in larger doses apparently. With the already disturbing and vividly scary nightmares I already had this increased so much more with the added factor that I didn’t know when the dream had ended and was still in a position to attack someone 20 mins after I got out of bed.

NO WAY turns out I am now sleep deprived and depressed Low as and spiraling. So I am taking some time off it till I see my psychiatrist during the week. I really trust he does the right thing by me. He really listens and helps me a lot (Normally it’s a month to get in but when I called him and explained  he got me an appointment straight away. It was a huge relief to me because I can’t keep trying to live like this it is in every way – crazy- and the more I try to deal with the problems the more rocky situations get. I really hope today I can get my self out a bit or do some sport to get the adrenaline out.  I will do at least one constructive thing today that has got to make me feel better. I think part of my problem is that I need a lot of excitement in my life, real excitement, I think that’s why I have always done extreme sports.  I want to do more but it’s hard when I am so fatigued, It really doesn’t seem fair having a fit strong body that won’t do what I want.  I really have to push hard.  I hope I can get into some routine soon so I can feel secure again instead of this shaking mess. Wish me luck,

Peace,

NW

Yesterday and Today

the difference between yesterday and today is huge, If I had been dead yesterday I wouldn’t have studied and got my car licence,

If I was Dead yesterday there would have been no one proud of what I had achieved.

If I were dead yesterday I wouldn’t have enjoyed the sun that blasted it cosmic rays down to us.

If I were dead yesterday I would’ve missed out saving a lizard from the road.

If I were dead yesterday I wouldn’t have finished my artwork.

If I were dead yesterday I would have missed so much.

If I were dead yesterday I wouldn’t have met nice people on my street.

On the other hand

If I were dead today I wouldn’t have to put up with this crazy amount of pain (TN probably from being upset)

If I were dead today I wouldn’t have been told by the doctor I will have to wait for my licsence.

If I were dead today I would have kept my cool and not launched an attack.

If I were dead today I wouldn’t careless.

If I were dead today I could have all my control back.

But if tomorrow was to come and give me a hand and break down the walls I want to be a part of it for the good times.

I have realized fully that people in positions of power are prone to let you know. Be careful who you disclose information to, I have one doctor that would put handcuffs on me if it were legal and another who lets me have free reign because he knows that’s the way I will recover. I wish you all the best.

Peace out,

NW

– Just a thought –

Last day of the year, Let’s try again.

The last month has been difficult for my whole family with many problems we have all had to deal with, Some days I think about every third day I consider ending myself, What stops me? well I have a lot of friends overseas and here I feel like I would be taking something from them if I left. So I will put up with the pain and put up with the emotional pain I am being put through. I want some peace but sometimes it doesn’t come at all. I put good energy out there to help make the world better, 2 minutes later The Nanny State Police are at my door.

The individual Cops I meet are generally nice and helpful. But the fact people don’t want me around is enough for me to stay and really indulge in life and with my break crew and friends. Watch me kick it better then ever next year. I will be the only one in my family in this city (this city is mine now) Time to show what I am really made of and yeah I am tougher then sticks n stones, more like a tough boulder with an 80kg Caber (did I mention Cabers are to throw across narrow chasms to cross!!! Bridges not walls.

Why haven’t I called a health line life line or gone to hospital? Because it’s a ‘shit circle’ (Lahey) and when Im in it theres nothing but a powerless  struggle between cops, docs and I. How can they tell me not to do something. they are just words. Makes me wanna get out faster. Right now I’m on cruise control. Just keeping everyone happy, so smile for this world, If you smile others will have not a fuck of an idea how you are or even care. Once they see the smile they assume ya home safe.

I know the people reading this are probably above average intel otherwise you would have felt sad and probably angry at things I have written in the past up till – right now- If that’s the case I happily invite you to leave.

The hate mail I get is really spamming my inbox. So if you have the time to write hate mail please send it to ebeboy@hotmail.com as the collection is quite large (Imagine your hate mail in my inbox on a huge pile of unread excrement) Sounds good hey. (I might even  publish you and send you some royalties) Hate is useless and only perpetuates more!!! So I will send you love in the hope you feel good enough in yourself to understand others. Peace

To all the wonderful people who have brought sunshine to my life and shared skills and knowledge you may send what ever you like when ever you like. I will be happy to read and report back. Much Love

My goodness if anyone ever had insomnia I get it, last 12 months at least I have only had max 5 hours on the best nights on the worst none (days in a row) and because of the depressant medication Im on they are scared to give me anything to sleep, even working out all day doesn’t help especially when the fatigue is so bad you fall (tight rope/ Acrobatics/ Dancing) Maybe I shoulda stuck with my stamp collection and embroidery – nah no way – for me that’s not living enough for me I am a self obsessed risk taking maniac and anything less would just be too soft. I understand other people get great pleasures from these thing but I will always need more and more challenges to prove to myself I can do it.  I have to especially with the TN. I have to show that pain it will not effect my life.

On another note if you were a doctor and told your healthy patient not to have kids or doesn’t even know what TN is and claims mind control can get rid of it. If he also tells you what are you depressed about – then without chance to answer he says get over it. I think that special doctor deserves his own blog post!!! His name in lights for the first time famous for being stupid and rude to all that meet him. He is actually that stupid he would probably think it was a compliment because it’s the only search that will come up on google. I might even get his name up on google before his practice gets a chance three pages later. I know revenge is not right but I don’t see this as revenge I see this saving many people from feeling depressed by seeing this GP (Genius Pig) His fifteen seconds of fame is coming up!!! Sorry if it ends his career of hurting people but that’s life (as he says: suck it in)

Disclaimer: No offense to real pigs they are intelligent beautiful animals. With a strong loving heart.

I hope you all have a great new year and for those who have resolutions try your best but don’t ever feel like a failure, earth is a practice ground for us.

Hug something tonight a friend a pet or yourself.

Peace & Love,

NW

See you all in 2012 ❤

 

November the hardest month of this year

So this month I have been in agony so no sleep, irritable about to kill the neighbors if they step out of line one more time. They have abused my dogs smashed my car put explosives in the yards of houses around me. Stolen, Smashed 100’s of bottles on driveway and all down my street. If they blink at me I am ready to get all my energy together and give em a piece.  Lets see… I will ask the cops to help again but if they just put this on the records and wait for it to build up and the kid (19) next door can just get escorted to jail for the serious offenses he has done, I will relax. His Mother is to blame as well for having the saying to her kids “If your not caught you didn’t do anything wrong” what sort of parent gives they’re kids that advice? I just feel sorry for the young girl living there, no one in her family respects her and her evil brothers and Mother aren’t any help to her. I don’t think I will need to do anything though, They are so stupid with explosives and poisons they will end up screwing themselves over.

As for my life and it’s manageability. I just got off the phone to lifeline they seem not to call the police and ambos straight away. Even when I told them I wasn’t well, I just promised I would call back if it got to a stage where I couldn’t handle it anymore and am getting too frustrated.  If ya call that not sleeping, agitated to the point I punch the punching bag till my knuckles bleed and have no appetite then when I do eat I feel sick… Well I am there. I have no control over anything and when my partner asks what I want for dinner and I am not hungry I feel bad and say I am hungry so he thinks I am doing better then I am, Now I know at this point many of you will be saying why hide it just be honest, and many will be thinking just fake it till you make it, Well I’mm sorry it seems like a loose loose situation. I haven’t seen my peer worker for a month or so. I don’t know the number. I should probably look it up.  When I said I’d get back to J my peer worker I forgot I didn’t know his number and by now I am probably kicked off the program… wait I think it musta been a “compliance disorder??? WTF. I can’t keep up with everything.

Right now it’s 6.30 am and no sleep in sight. It’s been a year of insomnia now and I don’t know weather Im asleep or awake when i walk around I don’t remember weather dreams are real or if I really did leave my mobile out in the rain. Who cares right. I got 2 spares. The thing that sucks is even my partner has no mobile and it’s just crap I cant contact him or anything.  I feel like if this avalanche doesn’t slow or stop soon it’s gonna be the whole mountain. If that’s the case I am going on holiday.  I am sick of living for  people that don’t appreciate me or anything I do. The pain is excruciating. I don’t think the doctors are taking this seriously enough.But then again I have not expected much from doctors after The local pain clinic put me on a drug that caused much emotional pain and suffering. That was they’re only offer of help or the dangerous brain surgery that lasts a couple of years. I am old enough to take care of my pain now I don’t need the government to baby me.  I need more control soon!!! Talk about unreasonable.

I wonder what a beautiful world this would be if I weren’t here. The neighbors make this planet dark and evil – (they call themselves christian but apart from owning a bible I haven’t seen any other sign of christian beliefs.) Maybe the world especially my town would be so much better off without the little boys next door (19 -21 yrs) they better grow up quick because if they don’t it’s going to be a very hard lesson.

I will not let them stop me from getting around and I can only laugh at them when I see there hate-ugly faces staring at me when I do something. (dance, Slackline, ride, skateboard, kick the football)  They really need to get a life or pay to watch me train.

I think I’ll walk up the shops now n wait for em to open and get the first coffee of the day. Yeh it’s cold out there  summer mind you but once I start walking it wont be so bad.

Peace, NW

4 hours sleep, loss of 3 kilos in 3 days

Well ya can’t say I didn’t try, Last night I took a horse amount of tranquilizers, still had some withdrawal symptoms from taking my opiates too late. So struggling to get comfy my partner talks me to sleep, Bless the guy, he really tries so hard to help me (us). I look back at how I react to him and it’s just wrong, he does everything in his power to stop me from realizing this planet isn’t worth it. Katie screams all day and night. I can’t deal with it or run away from it. So somehow I am going to be doing shows with that in the back of my mind.

I can’t eat, I don’t want it to seem like I blame anyone for my lack of appetite, It’s just another reaction to my life.  I had one half a fork of dinner last night and it was a really nice looking meal my partner made, I could probably do with having a plate with much less food on it (That much kinda scares me.) So how do I feel? I feel nothing… Nothing at all. I have no happiness, the sadness I have doesn’t even show as I am expressionless, even if I just won a million dollars, I would still have the same “so my new comic hasn’t come in?”  I think to get an expression on my face you would have to pass me a gun or a noose, Then you may see a joyous happy person who is about to be set free of the pain and struggle of everyday unrelenting TN and RRV  (which I was told would go but the docs can tell that to my arthritic body in the morning.)

People don’t see that I am doing my best and trying to get me to move forward when Im falling back is just going to make my life harder. Yeah sure I’ll do homework sheets (where am I 6 years ago at the flats) Im over homework sheets never worked for me at school, definatley not going to work when my only will in life is to write how I feel. This is ridiculous a waste of air for other people and I think I’m gonna cut it short, no use waiting in a situation like this, I would love some understanding before I do the deed but if it doesn’t come I wont expect it to. Everyday is just another day I am asked to do something well out of my capability, I can’t even keep up with my own business,  I will have to shut down, close off friends and discreetly work out what it’s going to be. I think I have already been here way past my time.

Just goes to show, you can help and you can entertain but you can’t expect a fraction of it back. I thank the love of my friends for keeping me going this long because I wouldnt have experienced real love if not for them. That’s all I needed from this world and I feel this is enough for me.

Peace,

Night Worrier

Sick of it all ready to go. if by starvation let it be, If just pure neglect (an accident) What ever,  I will find a way out.

Change is Never Easy

Berrocca, chamomile, running, walking, skipping, dancing, Meditating, Yoga, Chanting, drinking 8 glasses of water a day, My fitness has gone down significantly.  This is quite distressing. I am trying to motivate myself but my thoughts are not letting me enjoy a moment. Partly because of the lack of food since – well this is a bad run of months Sept to Jan 1st. Forgetting Tablets, Sleeping 2-3 hours a day. I’m sure that can’t be helping.

Every time Change comes I run and hide. The only change I wouldn’t find to scary is to be put in a situation where I am needed. I don’t mean (spare parts*).

The issues with my family have been long standing and aren’t likely to cool anytime soon, Especially with the latest feud. I stand strong with my Little Brother he has made a life for him self in Japan. He is getting married there and working, Even a loving family. I am so very happy for him.

On the other hand I will miss him because it will be so long before I see hm again and life is unpredictable, I can defiantly say that for myself. So I will be happy in my heart he is doing what he desires and deserves.

It’s a pity I can’t say the same for the others in the family, Who have even been as rude as to not talk to my brother because he will be not only leaving the “family business” (that doesn’t include me and never will.) But as they see it he is leaving them.

My brother and I have grown up very close, very close best friends I would say. We will both miss each other until we see again.

I am afraid when he leaves I will have trouble coping with my family back here. They will expect more of me, be much more emotionally demanding, and tin all honesty I would like to say, “Look here’s my older brother who leaves >footprints of gold< If he can stop criticizing or being rude or putting up barriers to hide behind his sarcasm, He is a really good son to my Mum,  My Mum can even go to his house, I don’t think she will visit me unless I leave my partner, (That said I would leave the country as well.) My Little Brother and I have always been black sheep. In all familys we have been in – All of them. Luckily my lil bro proved them wrong and showed his independence to my family, It showed them there was more to the – kids- (referring to my brother and I)  I tried my whole life to prove myself, Music and science and sport. It all seemed overlooked or unnecessary, Maybe they thought I could make nothing of it. Now my family sis still pretty blind to the effort I put in not just to survive, but be successful and be something/someone.  I don’t expect then to come to my shows or that but I would like the same respect for what I do. Putting the trigeminal, rrv, GAD,CF, D.I.D and constant thoughts and plans of suicide to a side and I would think they would see how hard and how much heart I put into living, entertaining, caring, babysitting, local handy person (Even for neighbors that only call on my help for a snake removal, then they go back to disliking me from the rumors the neighbor spread years ago.

Finally I think the situation with them will be under control soon. eg, Hundreds of police reports, (they can’t all end up in the bin.) Regardless of they’re race and where they came from, Australian Law is just that and I welcome people to this country with open arms. I will not accept the behavior of people who don’t understand common courtesy nor are racist when they come here towards our country. eg. Arsonists, rape, discrimination, arrogance towards locals. These are all things my heart and soul stand against and I asked for mediation they have refused. I have evidence enough to get an arrest and I think it’s time to report it all to the police.

Anyone that’s stands for truth and justice will feel what I mean.

Thank you, Peace.

NW